ANARA creates scientific visibility on the extent and outcomes of ART in Africa
ANARA is a research network and registry. ANARA is led and coordinated by Silke Dyer (Professor, FCOG, PhD; South Africa) together with representatives from participating African countries. The registry is maintained by a small operational team that safeguards the integrity of the data. ANARA strictly protects the anonymity of patients and will never disclose data from individual ART centres.
ANARA respects and secures data ownership: ART centres own their own data, countries own their country data, and ANARA owns the continental data. ANARA has been endorsed by regional and national fertility organisations and is in South-South Cooperation with the Latin American Registry for ART (RLA) and together with RLA in Triangular cooperation with the International Committee for Monitoring ART (ICMART).
ANARA closes the data gap of ART in Africa by
- building a continent wide collaborative network among assisted reproductive technology centres
- collecting, analysing and disseminating data on availability, practice and outcomes of ART
ANARA protects
- Patient and ART centre confidentiality
- Ownership of data
- Individually: ART centres continue to own their own data
- Nationally: Countries continue to own their national data
- Regionally: ANARA owns the Africa data
- Individually: ART centres continue to own their own data
- Nationally: Countries continue to own their national data
- Regionally: ANARA owns the Africa data
ANARA reports back annually* to
Each participating centre, confidentially their own data.
Participating countries their national data.
The region, their regional data.
ICMART, the International Committee Monitoring ART, the Africa data.
The global scientific community, the annual report from the African registry.
- The report back requires the submission of cycle-based data to the registry.
The annual report is published in RBMOnline.
The annual report is published in RBMOnline.